本文采用深度访谈与非参与式观察的研究方法，以精神分析理论的“中间地带”为 抓手，经由罕见病患者群体来讨论社交媒介在生命体验中的意义表现与内在逻辑。研究发现，社交媒介是一个在内在感受与外在现实之间缓冲与包容的“中间地带”，它在一定程度上鼓励着罕见病患者全面接纳自身经验，以完成自我的确定与发展。此外，“中 间地带”的体验通过个体程度不同的“自愿性分离”“内外部协商”等来实现，并伴随着象征性的文化生活与幻想对个体经验的拓展，映射并维系着患者的个人价值与尊严。

From the perspective of “Intermediate Area” of psychoanalytic theory, this paper adopted the in-depth interview method and non-participatory observation, and discussed the significance and internal logic of social media in life experience through rare disease patients. The study found that social media is an “Intermediate Area” between internal feelings and external reality, which encourages patients to fully accept their own experience in order to complete self-determination and development. In addition, the experience of “Intermediate Area” is realized through “voluntary separation” and “internal and external negotiation” at different levels of individuals, and accompanied by symbolic cultural life and the expansion of individual experience by illusion, it reflects and maintains the personal value and dignity of patients.