作为“中间地带”的社交媒介:罕见病患者在网络空间的体验与连接
蒋锐 王佳丽
作为“中间地带”的社交媒介:罕见病患者在网络空间的体验与连接
Social media as the “Intermediate Area”: An investigation on the Internet experience of rare disease patients
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